Here you will find answers to the frequently asked questions (FAQs) you may have about the Register or your participation. These FAQs will be updated regularly and will cover a range of topics. 

General FAQs about the Register

Why do we need a Register?

The National Register holds nationally consistent health information within a single electronic record for each person, no matter where they are in Australia.

Healthcare providers can access this single patient record to view screening results, which helps them provide patients with timely advice and care.
 
Through the National Register we:

  • invite eligible people to start screening (at 25 for cervical screening and 50 for bowel screening), and send them a reminder when they are due or overdue for screening
  • provide a ‘safety net’ for participants who are at risk and who have not attended further testing by prompting them to have follow-up tests.
  • support healthcare providers and specialists to communicate more effectively with pathology laboratories.

About the National Register

Why has Telstra Health been appointed to manage the Register?

The Australian Government Department of Health appointed Telstra Health to build and operate the National Cancer Screening Register in May 2016, following an open competitive tender process in accordance with Australian Government Procurement Rules.

Who is Telstra Health?

Telstra Health is a standalone business unit of Telstra Corporation. Telstra Health has a strong record of delivering health solutions through the use of transformative technology.

The infrastructure platform that is part of the National Register has been in use over the last 20 years and is proven to be robust, scalable and capable of supporting the collection, storage, analysis and reporting requirements of the National Register.

Who owns the data?

The Australian Department of Health is the data custodian.

As custodian of the information, the Australian Government has control over the information, especially with respect to its use and disclosure.  

Can Telstra Health use the data in the National Register for other reasons?

No. In accordance with the National Cancer Screening Register Act 2016 and other relevant laws, data in the National Register may only be used for the purposes of the National Register.  

Is my information safe on the National Register?

Telstra Health complies with strict security standards. Information is only collected, used and disclosed for the purposes of operating the National Register, and as otherwise authorised by the Australian Government in accordance with the National Cancer Screening Register Act 2016 and other relevant laws. 

The National Register and Telstra Health must comply with all legal and legislative requirements applicable to the processing of and access to Health data. This includes the following Commonwealth Acts:

See also: 

For participants

This section contains FAQs that are relevant to members of the public around the register. 

Using the National Register

Can I access my personal information?

Yes. If you have participated in cervical screening, you can access and manage your contact information and screening status through our contact centre. Call us at 1800 627 701.

Can I change my name?

We obtain your name information from Medicare.

You can call us on 1800 627 701 to change your pseudonym or alternative name.

If you wish to change your formal name as recorded with Medicare, you will need to contact Medicare directly on 132 011 or visit www.servicesaustralia.gov.au.

Can I change my address?

We obtain your primary address from Medicare.

If you wish to change your primary address details as recorded with Medicare, you will need to contact Medicare directly on 132 011 or visit www.servicesaustralia.gov.au.
 
You can call us on 1800 627 701 to provide alternative contact details.

Can I change my date of birth?

We obtain your date of birth details from Medicare.

If you wish to change your date of birth details as recorded with Medicare, you will need to contact Medicare directly on 132 011 or visit www.servicesaustralia.gov.au.

Do I have to pay?

No, there is no fee to access your record.

How do I request to cease correspondence?

Please complete the web form to Request to cease correspondence, or you can call a member of the Contact Centre on 1800 627 701.

How do I defer my next screening date?

Please complete the web form to Defer your next screening date or you can call a member of the Contact Centre on 1800 627 701.

How do I opt out?

Please read important information about opting out of the National Register.

I am going overseas – will you get my screening test results from my overseas provider?

We only collect screening test results that have been performed in Australia. If you have a screening test overseas, the Register will not get your result.

Call 1800 627 701 to update your record with information that you are going overseas.

About the National Cervical Screening Program and National Bowel Cancer Screening Program

Why does the National Register need my Personal Information?

The National Register collects your Personal Information for the purpose of inviting you to screen through the National Cervical Screening Program and National Bowel Cancer Screening Program and for recording your screening test results. The National Register provides a follow-up service for people who have an adverse screening result and requires your contact information for this purpose.

How do I know when I am due for a screening test?

If you are eligible for screening, the National Register will send you an invitation to start screening, or a reminder of when your next screening is due.

For healthcare providers

This section contains FAQs that are relevant to healthcare providers around the National Register.

How do I access the National Cancer Screening Register?

You can  call us at 1800 627 701 and a member of our team will guide you through the process. 

You can also refer to our Quick start guide for healthcare providers.

I want to fax my patient’s results – how do I do this?

We support a fax service.

Fax completed forms for abnormal results questionnaire, colposcopy and treatment forms to one of the following numbers:

  • Cervical Screening Fax – 1800 627 702
  • Bowel Screening Fax – 1800 115 062

Please include a separate cover letter with:

  • additional information
  • number of pages faxed (including cover sheet)
  • your practice name
  • your fax number.

You must fax each participant report individually for privacy of personal information.

For pathologists or medical scientists

This section contains FAQs that are relevant to pathologists or medical scientists around the National Register. 

How do I access the National Cancer Screening Register?

If your laboratory is already connected to us through your laboratory system, please use your interface to request screening histories, send HPV molecular, cytology and histology test results or enquire about a person’s eligibility or screening status. 
 
If your laboratory is not yet connected to the National Register, you can call or fax the Contact Centre to make a request or send results as follows:

Phone:  1800 627 701 to speak to a member of our Contact Centre team.
Fax:

  • Cervical Screening Fax – 1800 627 702
  • Bowel Screening Fax – 1800 115 062

Please include a separate cover letter with:

  • additional information
  • number of pages faxed (including cover sheet)
  • your practice name
  • your fax number.

You must fax each participant report individually for privacy of personal information.

What type of secure messaging does the National Cancer Screening Register use?

We use HL7 messaging to provide a fast and efficient service for cervical screening results/history requests and bowel screening results. Read more about HL7 messaging from HL7 Australia. 

Where can I get HPV positivity reports?

You can view charts and tables relating to HPV positivity rates on our website.